Angelaidcares.org is moving to Raregivers.global

Relief for Raregivers™ who need it most

Connect with other Raregivers™, learn the tools of self-care, and be listened to without judgement

When life gets medical, people get emotional. We help you navigate.…

Raregivers™ Emotional Journey Map

The mental health of patients, their caregivers, and the professionals supporting them is a drastically undocumented and unsupported reality in rare, chronic and complex disease communities. Since 2000, ANGEL AID has been leading a meta-study of published research, proprietary data and documented, lived experiences that clearly define the emotional impact on medicalized lives. Our Raregivers™ Emotional Journey Map is for you - for free.

You can explore the map and learn more about the coalition on raregivers.global

Explore the map

Press Release

Half of rare patients are children

There are 350 million people worldwide living with a rare disease, more than AIDS and cancer combined. There are no cures for the 7000+ rare diseases and only 5% have treatments. One third of rare children will not see their 5th Birthday.

ANGEL AID provides emotional support to families living with rare, chronic and complex diseases.

The reality of daily long-term caregiving is unimaginable.

Support GroupS

Documentary Short-Film:Voice of the rare Mother

Featuring Gabi Conecker

“The enormity of my life overwhelms my feelings. Something has got to give. I need to create the space to receive help. This was the first step on retreat...to help me create space so I can receive.”

— Sarah, Rare Mom

woman sitting in a circle on the floor holding hands — Wellness & Support

Staying in balance can be challenging for long-term caregivers. Our supportive small group retreats and workshops are designed to refuel the body and soul - both in-person and online.
Explore Upcoming Workshops

“The things that make us special are also a great burden. It was a relief to set that burden down. I am just so grateful to connect as women and not have to start at the very beginning.”

— Lynn, Rare Mom

Calling All Raregivers™!

Global Family Resilience Survey

We have partnered with Indiana University, School of Social Work. Please help us document the social, emotional, financial and physical effects of long-term caregiving with our five minute Rare Mothers Community Needs Assessment. Results are anonymous and will be shared with you!

Complete Quick Survey