Meet the 2022-2023 Board of Directors

We are seeking new board members!

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Stacey Bailey
(Board Secretary) | Director of Communications | The Kavli Foundation

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Cristol Barrett O’Loughlin
(Board President) | Founder & CEO, ANGEL AID & Creator, Raregivers™ Coalition

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Phyllis Barrett Reusche
Writer & Rare Mother | The Bear Facts

Paige Rivard
Prader Willi Syndrome | Former Executive Officer

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Lisa Burke
Creator & Presenter | RTL Today

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Gina Glass
DreamSickle Kids | Executive Director

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Carol Jacobs
Founder | CaregiversCare (former IBM)

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Kirsten Meisterling
Vynamic | Director

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Pam Rattananont
Director | US Patient Engagement, Novartis

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Monica Pal
(Board Treasurer) | Co-Founder & CEO | The Monarch Mavens

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Scott Schliebner
(Board Chair) | Chief Commercial Officer (CCO)

Marcello Schutzer
Vice President of Finance | Fluidra

Jay Singh
(Senior Foreign Service Officer) / Mission Director, USAID