Rare Mothers™ Manifesto

To sustainably love and care for others, I have the right to…

  1. Take care of myself.

  2. Maintain facets of my own life that are separate from my loved ones.

  3. Seek help from others as I recognize the limits of my own endurance and strength.

  4. Acknowledge that feelings of frustration, anger, depression and grief can live in the same heart as feelings of gratitude, hope, joy and relief.

  5. Celebrate my caregiving victories.

  6. Protect my individuality and my right to make a life for myself that will sustain me in the time when my loved one no longer needs my full-time help.

  7. Expect and demand that as new strides are made in sourcing resources, treatments and cures to aid our rare loved ones, similar strides will be made toward aiding and supporting caregivers.

  8. Take pride in my role as caregiver and applaud the courage it takes to care and advocate for another human being.

  9. Receive consideration, affection, forgiveness and acceptance for what I do for my loved one for as long as I offer these qualities in return.

  10. To _________________(Please add your own statement of rights to this list using our form below. Pin it where you can see it. Read it. Everyday.)

To show your support, please sign the manifesto by filling out the form below.