Padma Gordon

Your family is a team and you need to communicate with them in order for things to flow. It can be challenging to engage in skillful communication consistently…especially with teenagers.

Padma Gordon

The benefits of slowing down are many. Some say that you will actually get more done when you slow down.

Padma Gordon

When you have a Rare child, long-standing friendships can change in an instant and things can get very awkward. Here are some nuggets from our conversation.

David Ross

Life can throw unexpected challenges our way, and often, these challenges require us to adjust and adapt. One such challenge is the transition from a regular life to one as a patient expert, especially when dealing with a rare disease.

Padma Gordon

In our Rare Family Dynamics Workshop this week, we talked about what it takes setting boundaries with ourselves and others.

Padma Gordon

Sometimes a busy mind and a swirl of thoughts can get in the way of opening and accepting. You might find yourself getting lost in all of the things on your list and wondering how you will get them done. Honestly, you will not. No one does.

Pamela Russell

In today's fast-paced world, we are often driven by the need for productivity and achievement. We strive to accomplish more, do more, and be more. While ambition and determination can lead to success, we must also remember to pay attention to our bodies and the signals they send us.

Padma Gordon

There is an initial period of adjusting to your Rare child's diagnosis, and then later on you may have another round of adjusting to their diagnosis. As a raregiver, you are being asked to adapt and grow continuously.

Pamela Russell

Self-care has become an integral part of our lives, a practice that emphasizes nurturing our physical, emotional, and mental well-being, because our minds and our bodies are intimately connected..