Padma Gordon

This week our dialogue centered around vulnerability. Vulnerability has the potential to draw out our strength. And yet, when we feel vulnerable our worrying self can become activated. As a raregiver, you are familiar with vulnerability. You experience it every day. And, it is useful to remember that vulnerability is at the core of being human.

Padma Gordon

Our Rare Family Dynamics Support Group is a wonderful place for you to share your heart. This week we talked about the things that sustain you in the early stages of your Raregiver’s journey. Many shifts and changes occur when you become the primary caregiver for your Rare child. There are helpful ways to manage your life and conserve energy.

Padma Gordon

We kicked off the fourth quarter series of our Rare Family Dynamics Group on Tuesday. We explored what it is like to receive the nourishment of your own attention. As a raregiver, most of your attention goes out and often very little goes in. Nourishing yourself is important too. Acts of self-care and gathering in community are nourishing ways to spend some of your precious time.

Padma Gordon

This week I had the honor of facilitating the Rare Mother‘s Round Table. The group had just completed a six-week meditation journey. We reflected on which elements of the meditation were most supportive and which pieces were challenging.

Padma Gordon

One person talked about how her Rare child takes almost all of her time. He fills her days with heavy lifting of a growing body that can’t move itself and is still in diapers. She spends time on hold waiting to talk to practitioners and time at doctor’s appointments. Her time is consumed with his care.

Padma Gordon

The conversation about end of life preparation is huge and a lot of tears were shed this week. In our Rare Family Dynamics group we explored what it means to honor the journey with your rare child. What kind of preparation do you need to do? What will help to make this journey as graceful as possible?

Pamela Russell

Love stretches wide and deep to encompass the many facets possible in life. A common thread throughout all types of love is care.

Padma Gordon

We asked these questions: what is it like to know that increased care is coming? What arises for you in the face of this? Here is some of what was shared. May it serve and support you on your journey.

Pamela Russell

At the beginning of the 21st century most people would have considered meditation as something only monks did… fortunately, this perspective has changed. Meditation is now something anyone and everyone can have access to. Making time for a small daily practice is something that benefits every being, no matter our backgrounds or the current goings-on in our lives.