
Blog
Being Seen & Heard
Padma Gordon
In your relationships, the first thing that you can do is practice self-compassion. The second is to interrupt your reactive habit patterns and set boundaries around what doesn’t feel good.
Lets Face it - Being Human Is Hard Work
Pamela Russell
Between a long to-do list, endless notifications, and worries about the past and future, it’s not uncommon for days to fly by on autopilot. Then, when a curveball hits, life becomes even more overwhelming.
Self-Care Is Not Selfish
Pamela Russell
As a Growth and Trauma expert, I see so many mothers, and I can tell you that the effects of self-care - or lack thereof - come up in almost every session. So few of us are proactively prioritizing ourselves to the extent that we have forgotten who we were before kids, how we even prioritized ourselves and what it felt like to invest in us. And when we do manage to take time for ourselves, the mom guilt sets in soon after.
Mental Health in Rare Disease is a Personal Journey
David Ross
Whatever someone's situation regarding a rare disease, the one thing I feel we all have in common is that it is life changing for us all. This is true whether patient or caregiver, newly diagnosed or long-time patient. We learn early on that it is important to give yourself time to the diagnosis and seek as much support as possible while you come to terms with your new life.
Setting Boundaries
Padma Gordon
In our Rare Family Dynamics session this week we had a conversation about boundaries. Boundaries are a way of honoring yourself and they help you protect your peace.
Friendship: Timeless or Expired?
Padma Gordon
In our Rare Family Dynamics session, we talked about friendship which was apropos since it was Valentine’s Day. We looked at what it means to be a good friend to yourself and to others.
Rare Men's Group David Ross
David Ross
We are excited to share this very first blog post in honor of our first ever Men's group coming up this week! By sure to check it out and join the Rare Men's Group.
Places We Go when Things Are Uncertain Or To Much
Pamela Russell
Life has so many layers, and we can easily get lost in the details. An analogy I recently heard is that we are actually the whole ocean… the waves, the froth and the depths are parts of us, but not our whole. And when we get caught up feeling just one aspect of our lives, it can keep us from recognizing and experiencing this feeling of wholeness.
Balancing Life Includes Fun
Padma Gordon
We brainstormed some ways to have fun, and we came up with: axe throwing, attending a rage room, miniature, golf, karaoke, dancing, singing, or watching a comedy show. Prioritize having fun in your life. Fun helps with your creative juices. Creativity is essential for coming up with out of the box solutions to difficult problems.
Filter by Category
Filter by Author
If you’re enjoying these blogs, please join our Mighty Networks Community. You can receive notifications for new blog posts, view additional content, and communicate with other rare caregivers.