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Cristol O'Loughlin Cristol O'Loughlin

Being Seen & Heard

Padma Gordon

In your relationships, the first thing that you can do is practice self-compassion. The second is to interrupt your reactive habit patterns and set boundaries around what doesn’t feel good.

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Cristol O'Loughlin Cristol O'Loughlin

Lets Face it - Being Human Is Hard Work

Pamela Russell

Between a long to-do list, endless notifications, and worries about the past and future, it’s not uncommon for days to fly by on autopilot. Then, when a curveball hits, life becomes even more overwhelming.

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Cristol O'Loughlin Cristol O'Loughlin

Self-Care Is Not Selfish

Pamela Russell

As a Growth and Trauma expert, I see so many mothers, and I can tell you that the effects of self-care - or lack thereof - come up in almost every session. So few of us are proactively prioritizing ourselves to the extent that we have forgotten who we were before kids, how we even prioritized ourselves and what it felt like to invest in us. And when we do manage to take time for ourselves, the mom guilt sets in soon after.

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Cristol O'Loughlin Cristol O'Loughlin

Mental Health in Rare Disease is a Personal Journey

David Ross

Whatever someone's situation regarding a rare disease, the one thing I feel we all have in common is that it is life changing for us all. This is true whether patient or caregiver, newly diagnosed or long-time patient. We learn early on that it is important to give yourself time to the diagnosis and seek as much support as possible while you come to terms with your new life.

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Cristol O'Loughlin Cristol O'Loughlin

Setting Boundaries

Padma Gordon

In our Rare Family Dynamics session this week we had a conversation about boundaries. Boundaries are a way of honoring yourself and they help you protect your peace.

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Cristol O'Loughlin Cristol O'Loughlin

Friendship: Timeless or Expired?

Padma Gordon

In our Rare Family Dynamics session, we talked about friendship which was apropos since it was Valentine’s Day. We looked at what it means to be a good friend to yourself and to others.

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Cristol O'Loughlin Cristol O'Loughlin

Rare Men's Group David Ross

David Ross

We are excited to share this very first blog post in honor of our first ever Men's group coming up this week! By sure to check it out and join the Rare Men's Group.

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Cristol O'Loughlin Cristol O'Loughlin

Places We Go when Things Are Uncertain Or To Much

Pamela Russell

Life has so many layers, and we can easily get lost in the details. An analogy I recently heard is that we are actually the whole ocean… the waves, the froth and the depths are parts of us, but not our whole. And when we get caught up feeling just one aspect of our lives, it can keep us from recognizing and experiencing this feeling of wholeness.

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Cristol O'Loughlin Cristol O'Loughlin

Balancing Life Includes Fun

Padma Gordon

We brainstormed some ways to have fun, and we came up with: axe throwing, attending a rage room, miniature, golf, karaoke, dancing, singing, or watching a comedy show. Prioritize having fun in your life. Fun helps with your creative juices. Creativity is essential for coming up with out of the box solutions to difficult problems.

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