Pamela Russell

Each one of us are being pulled in many different directions, even within a single moment, let alone a single day. You could say you feel fragmented… which could easily be interpreted as different pieces of you are getting asked to take care of different things.

Padma Gordon

When you are navigating life with a Rare child, it can be easy to fall into catastrophic thinking. Maybe you wonder about what could be different in the future or things you should have done to change the past. Be mindful. Notice your train of thought, pause, and slow down. The antidote is to be with what is happening in the present moment.

Padma Gordon

Communicating about your Rare child can be challenging, awkward, and maybe you don’t know what to say to people. It’s useful to remember that speaking up is a gift to others. Sharing yourself and your life experience enriches other people’s lives.

Padma Gordon

There are the day-to-day things that you can do to maintain your health and well-being, like meditation, prayer, exercise, and positive self-talk. Be kind to yourself.

Pamela Russell

There are many ways we can feel in our lives… And something we often think about, if not strive for is wholeness. Something that is “whole” is complete, with all its interrelated parts working together as designed.

Pamela Russell

Your brain is an amazing part of you! One of its jobs is to move your nervous system into a survival state anytime it feels like your safety, sense of dignity, or belonging are threatened. And when that threat has passed, a healthy nervous system will move back regulation, a state of natural movement or rest and digest.

Padma Gordon

It’s a practice to receive yourself and at first it can feel awkward. It can be really helpful to be specific about what you are appreciating. Notice the good you are doing. It’s more than you can imagine and many raregivers take much of what they are doing for granted. You have to train your mind to look for the good things.

Padma Gordon

It is important to remember that being human is an invitation to receiving it all. What if you think about receiving as a muscle? By exercising this muscle, you expand your capacity to receive the full gamut of life's experiences.

Pamela Russell

So many of those beautifully written and curated posts about self-care are meant to encourage us to set aside other’s needs and tend to our own. Sometimes these posts do ‘their job’ and we make a plan to “do something” to recharge.