Padma Gordon

As a raregiver, you may choose to take an IVF journey where you can potentially receive genetic testing. As you go on this journey, it is important to refrain from comparing your experience to anyone else’s.

Padma Gordon

We talked about how things that used to be a big deal before you had your Rare child may not seem like such a big deal anymore. When things like bringing your child in for a procedure where they are receiving general anesthesia don't seem so huge, it is as if the Richter scale has changed.

Padma Gordon

We often think of self-care as getting a massage or resting with a lavender eye bag, while listening to soft music. The possibility is to be curious about what fills up your bucket, what nourishes you and what it is that interrupts the grief cycle.

Padma Gordon

How does stillness support your ability to communicate? A quiet mind gives rise to clarity, compassion, and the ability to notice what’s needed. You will be able to respond rather than react when you lead from a place of peace. Wisdom will help you navigate the hard times.

Padma Gordon

We asked these questions: What does it feel like to be on your own team? How do you receive your team which includes your family, friends, and practitioners?

Padma Gordon

Being a true friend means being compassionate, listening, empathizing and bringing curiosity. It means being there for each other in times of need and holding space without judgment and making room for all the feelings that arise.

Padma Gordon

Perhaps you have friends or family who are unaware of the importance of letting you know that their child had a cold or a sniffle this week. For your Rare child, a sniffle could mean hospitalization. A sniffle could turn into a life or death situation brought on by a respiratory infection.

Padma Gordon
Along the way there are different phases of acceptance and sometimes you will be at peace with what is, while at other times you will fight with yourself and fight with the situation. The more you can open, widen and soften through your heart, the easier it will be.

Padma Gordon

This week in our Rare Family Dynamics workshop we talked about what it means to be an advocate for your Rare child. How can you stay connected and nourish yourself as you advocate for your child? Let’s face it, it’s not easy.